Day 3, January 30, 2013. Today is the big day, Parker goes into surgery to have a IV port put into his chest, and to have a heart echo, also a spinal tap to check for leukemia in the spinal fluid, and a bone marrow test to see how much leukemia is actually in the bone marrow. It is very hard having to wait to know the results. But as hard as we think this is, we really have no idea what Parker is going through. He goes in for surgery at 2 pm, and he hasn't had anything to eat since midnight, and he could only drink clear liquids until 8 am. Poor little guy! My Mom and Step-dad came up to the hospital today, and I am very grateful they took the time to be with us. I am very scared for all of this today, so I am glad they are here for us. They came up and told us they are ready for Parker, both Robert and I get to walk him down there, thank goodness, I couldn't do it alone. I do not like when my children have to be taken away from me and be under sedation. Scary! They walked us down to the OR, and it was very intimadating at first because there are so many staff members in there waiting to go into help with surgerys. The docs came and talked to us about how Parker would do if they took him back there, and if we would want them to give him a small dose of medication to help with seperation from mom and dad. We said yes, because we knew he would freak out, and if it wasn't already hard enough have them give him medication and he started swaying back and forth, and he couln't really look at us, and then we had to leave him, it would have been much worse if he were screaming because we left him with people in masks and gowns, people that he has never met before. We came back up to his room with my Mom and Rory, and we had a good cry together. Many good crys.. :)
When we took him down they said it would be about 3 1/2 hours. The hardest thing is having to wait for the doctors to call while you sit in the room and wait. Robert and I, and my Mom and Rory had gone for a walk down to the lunch room so we could grab something to eat. We hadn't eaten much, because our mind was set on so many things. We got food and took it to the room for all of us, and it was awful. Thank goodness we have such great family that brought us great food, and lots of snacks to eat while we are here. :) They had told us it would take about 30 minutes to put the port in, and that was the first thing they were going to do. So after about an hour and a half, we were worried. They had called us and said the port was in, and it had taken a little longer than they thought. About 2 1/2 hours later, they called and said he was done and everything went good. They took him into recovery and they said they would call and let us know when one of us could go down to be with him. When they had called, I was very nervous to go and see him, because it breaks my heart to see him hurting and I didn't know what his port would look like. They took me back to him, and I started to rub his head and the nurse jumped at me and told me to wash my hands and glove up because they had put his first round of chemo in his back. FREAKED ME OUT! Because they had told us to be careful if you get bodily fluids on you because the chemo can have bad side effects for us as well, but not a big chance of it. It had taken them so long to do the surgery, because the bone marrow was so full of leukemia that they had to take from both of his hips, and they also took more blood from his port. Scared us to hear that. They gave him his first round of chemo in his back today, and they said that the chemo starts to break apart the blasts (which are the leukemia cells) so quickly that they put him on a medication called allpurinol, it helps to push the blasts out of your system so it doesn't effect the liver and kidneys. They also had a saline IV going constantly to help push everything out, so he was soaking wet every hour or hour and a half if we didn't change him. So hard because that means we are going to have to change him in the middle of the night and he will not be happy. But, they say he will get used to it. But great news came out of all of this today. The spinal fluid has NO, I mean NO leukemia cells at all. YAY!! They will still treat it as if there were though. Don't take any risks. So the day is almost over and they gave Parker some pain pills and his milk and he is sound asleep, and we are happy today is done. He did great with it all. We just need to keep moving forward day by day, and always try to be positive. Thank you for all your prayers, love and support. :)
No comments:
Post a Comment