Monday, March 25, 2013

Day 2, January 29, The day we officially find out what Parkers diagnosis is..

Day 2, January 29. Today is the day we find out what the docs have to say about Parker's leukemia. They will let us know by today if it is AML or ALL. Rob and I, and our families have been a mess, as hard as this has been, we are now just praying it is not AML leukemia. We have had a very long night, and we can't stop crying, we still feel like we are in a bad dream. You never think you will here those words, ( your child, who is only 18 months, has cancer). The doctors came in and talked to us and told us he has ALL leukemia. They still have to run tests to see how far along it is. They have to do a bone marrow test and a spinal tap to see how much leukemia is in the bone marrow, and to see if there is any in the spinal fluid. They also do a genetics test to see if there are any bad mutations that would make it harder to treat his leukemia. Now that we know which type of leukemia, we will find out where to start with treatments. One of the doctors is coming in to talk to us about everything we need to know about Pre-B ALL leukemia. They have to draw his blood and then send it away for the genetics tests, and we will not find that out for a week at least. They will do the bone marrow test and spinal tap tomorrow, January 30, they will also be doing a heart echo because it can effect their heart and they will do a few through it all because chemo is hard on the heart. They told us when they do the tests, that the bone marrow will be 80-90% full with leukemia cells. FREAKY! Not knowing much about leukemia, that really scares us hearing that there is that much in there. They also told us that there would be leukemia in the spinal fluid. We are very anxious to find out how bad it is. We just don't really know what to expect right now. Parker so far has had a blood transfusion, and a platelet transfusion, which he has done very well with. They watch them very closely to make sure their little bodies can handle that. When we took Parker to instacare on January 28, they did his labs and his platelet count was only 9, they said they give people transfusions when they get to 12 and that is as low as they let it get. They will start doing chemotherapy tomorrow once they put a port in him. The port will be inserted in his chest and that is where they will draw his blood, and they will push his chemo through the port as well. So if we just hold on strong and get through today and tomorrow, hopefully we will know most of whats going on and be able to take it day by day. Parker has been such a strong little guy and we are so blessed he is our son.


This is Parker the first day in the hospital, he was just so happy! (most of the time) :)



We are very grateful for all of our family and friends that have offered us a place to stay and to lend a helping hand. We appreciate it all, and we want to thank everyone for their kind words, love and support. :)

1 comment:

  1. Ashley! You and your sweet family are in my thoughts and prayers. Parker IS a fighter! :) Love you!!

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